Patient-Centered Outcome Measures

Autism Spectrum Disorder

Completed

ICHOM ASD Set of Patient-Centered Outcome Measures Webinar

Our webinar on Autism Spectrum Disorder took place on 4th October 2021 and ­presented the newly launched ASDSS. The event included a discussion around the project’s inception, ASDSS process, the final Set of Patient-Centered Outcome Measures, implementation of the standard on a global scale and how this will affect people with autism.

The recording of this webinar is available to view by clicking the button below:


The ICHOM Set of Patient-Centered Outcome Measures for Autism Spectrum Disorders is the result of hard work by a group of leading researchers, psychologists, behavioural analysts, and service user representatives. It represents the outcomes that matter most to children (over the age of 18 months) and adults with autism spectrum disorders. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their service users.

Track A (recommends tools with cost associated with them to match existing tools in the current reimbursement models in North America)

1 Tracked via the Repetitive Behavior Scale-Revised (RBS-R)
2 Tracked via the Social Responsiveness Scale (SRS)
3 Tracked via the Vineland Behavior Scales (VABS)
4 Tracked via the Preferences for Activities of Children (PAC)
5 Tracked via the Child and Family Quality of Life (CFQL-2)
6 Tracked via the McMaster Family Assessment Device
7 Tracked via the Positive and Negative Affect Scale (PANAS / PANAS – C)
8 Tracked via the Child Behavior Checklist (CBCL)
9 Tracked via the Brief Infant Sleep Questionnaire (BISQ)

Track B (recommends tools that are free or have a low cost, and can be used in any healthcare system)

A Tracked via the Repetitive Behavior Scale-Revised (RBS-R)
B Tracked via the Vineland Behavior Scales (VABS)
C Tracked via the Patient Health Questionnaire-2 (PHQ-2)
D Tracked via the Child and Family Quality of Life (CFQL-2)
E Tracked via the McFamily Adaptability and Cohesion Evaluation Scale (FACES)
F Tracked via the Empathy Quotient (EQ)
G Tracked via the Pediatric Sleep Questionnaire (PSQ)

* Defined according to DSM-5 and ICD-11

ICHOM Standard Sets Autism Spectrum Disorder ASD Outcomes Wheel

Implementation Resources

You will need a Connect account to access the following documents:

ASD Both Track Reference Guide
ASD Data Dictionary Track B
ASD Data Dictionary Track A

You can access the following documents without:

Autism Spectrum Disorder Flyer
ASD licensing information
Reduced Autism Spectrum Disorder (ASD) Flyer

You can join here. If you are already a member, please login here.

ICHOM Accreditation Product Logo

All of the basic information you need to implement ICHOM Sets is available in the links above.

However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems.

This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

Find out more


Team that developed this set

PROJECT TEAM
Chair | Dr. Ivy Chong |
Research Fellow | Dr. Tim Kutta |
Project Managers | Alex Silkworth, Andria Joseph
Research Associates | Christiana Ilesanmi

THE WORKING GROUP CHINA
Diane Li | Ai You Foundation
Weihe Huang | Creating Behavioral + Educational Momentum

INDIA
Merry Baura | Action for Autism
Sudhanshu Grover | Action for Autism
Shaneel Mukerji | India Autism Center & MHF Kolkata

PORTUGAL
Claudia Bandeira de Lima | Institute for Evidence Based Healthcare at University of Lisbon School and Medicine

RUSSIA
Svyatoslav Dovbnya

SPAIN
Javier Virues | Universidad Autónoma de Madrid

UNITED KINGDOM
Neil Martin | Behavior Analyst Certification Board (BACB)

UNITED STATES
Amber Valentino | Trumpet Behavioral Health
Braden Josephson | Centria Healthcare
Dennis Dixon | Center for Autism and Related Disorders
Ellen Fittro | InBloom Autism Services
Hanna Rue | LEARN Behavioral
Johnathan Tarbox | University of Southern California; FirstSteps for Kids
Kim Strunk | Hopebridge
Kristine Rodriguez | Autism Learning Partners
Leslie Morrison | Easterseals Southern California
Peter Gerhardt | The EPIC Programs
Yagnesh Vadgama | Magellan Health

ICHOM Standard Sets Autism Spectrum Disorder ASD Working Group Members

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Implementation Map

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©2022 ICHOM | ©2022 ICHOM Sets of Patient Centered Outcome Measures are made available under copyright by ICHOM. They may not be used in commercial contexts without the prior written permission of ICHOM

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