Patient-Centered Outcome Measures

Breast Cancer

Completed

The ICHOM Set of Patient-Centered Outcome Measures for Breast cancer is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to persons with Breast cancer. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Complications will be recorded based on the type of therapy needed or action required to correct the complication as described in the Clavien-Dindo Classification and CTCAE v4.0

2 Includes depression and anxiety.

3,4 Recommended to track via the EORTC Quality of Life Questionnaire – Core Questionnaire (EORTC QLQ-C30).

5 Includes body image and satisfaction with breast(s). Recommended to track via the EORTC Quality of Life Questionnaire – Breast Cancer Specific Questionnaire (EORTC QLQ-BR45) and the BREAST-Q 2.0 – Satisfaction with Breasts.

6 Includes arm and breast symptoms. Recommended to track via the EORTC Quality of Life Questionnaire – Breast Cancer Specific Questionnaire (EORTC QLQ-BR45).

7, 8, 9 Recommended to track via the EORTC Quality of Life Questionnaire – Breast Cancer Specific Questionnaire (EORTC QLQ-BR45).

10 Includes sexual functioning and vaginal symptoms. Recommended to track via the EORTC Quality of Life Questionnaire – Breast Cancer Specific Questionnaire (EORTC QLQ-BR45).

11 Includes physical, emotional, cognitive and social functioning, ability to work and overall well-being. Recommended to track via the EORTC Quality of Life Questionnaire – Core Questionnaire (EORTC QLQ-C30).

12 Includes overall and cause-specific survival.

Implementation Resources

You will need a Connect account to access the following documents:

Breast Cancer Reference Guide
Breast Cancer Data Dictionary

You can access the following documents without:

Non-Metastatic Breast Cancer Manuscript
Breast Cancer Flyer

You can join here. If you are already a member, please login here.

ICHOM Accreditation Product Logo

All of the basic information you need to implement ICHOM Sets is available in the links above.

However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems.

This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

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Team that developed this set

AUSTRALIA
Rodney Cooter | Monash University
Geoff Delaney | South Western Sydney, Local Health District
Patricia Hancock* | Breast Cancer Network Australia
Wee Loon Ong | Peter MacCallum Cancer Centre
Christobel Saunders | University of Western Austrlia
Lisa Sheeran | Peter MacCallum Cancer Centre

BELGIUM
Francois Duhoux | Cliniques Universitaires Saint-Luc

IRELAND
John Browne | University College Cork

MALAYSIA
Cheng Har Yip | Subang Jaya Medical

ITALY
Karen Benn* | Europa Donna

MEXICO
Felicia Knaul* | Cancer de Mama

NETHERLANDS
Anne Knip* | Borstkanker Vereniging Nederland
Linetta Koppert | Erasmus MC Cancer Institute
Marc Mureau | Erasmus MC Cancer Institute
Mark Stoutjesdijk | Ikazia Hospital Rotterdam
Marie-Jeanne Vrancken Peeters | Antoni van Leeuwenhoek

SWEDEN
Yvonne Wengström | Karolinska Institutet

UNITED STATES
Kimberly Allison | Stanford University, School of Medicine
Patricia Ganz | UCLA Schools of Medicine & Public Health
Reshma Jagsi | University of Michigan
Henry Kuerer | MD Anderson Cancer Center
Sarah McLaughin | Mayo Clinic Jacksonville
Ann Partridge | Dana-Farber Cancer Institute
Dereesa Reid* | Hoag Orthopedic Institute
Thomas Smith | Johns Hopkins Institute

*Patient representative

ICHOM Standard Sets Breast Cancer Working Group Members

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