Congenital Upper Limb Anomalies
The ICHOM Set of Patient-Centered Outcome Measures for Congenital Upper Limb Anomalies is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Inflammatory Arthritis. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
- Includes mortality, bleeding, infection, wound healing and general medicine
- Evaluated via Goniometry
- Evaluated via Manual Muscle Strength Testing
- Evaluated via Dynamometry
- Tracked via PROMIS Upper Extremity
- Appearance tracked via Likert Scale
- Tracked via PROMIS Depression
- Tracked via PROMIS Anxiety
- Tracked via PROMIS Paediatric Global Hea
- Tracked via PROMIS Peer-Relationships
Implementation Resources
You will need a Connect account to access the following documents:
All of the basic information you need to implement ICHOM Sets is available in the links above.
However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems.
This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.
Congenital Upper Limb Anomalies community group & Implementation Resources
Join the Congenital Upper Limb Anomalies Community Group for access to all the Set Resources including the Reference Guide and Data Dictionary.
Team that developed this set
PROJECT TEAM
Co-Chair | Bran Sivakumar | Great Ormond Street Hospital
Co-Chair | Christianne van Nieuwenhoven | Erasmus Medical Center
Research Fellow | Monique Ardon | Rijndam Rehabilitation | Erasmus Medical Center
Project Leader | Alethse De la Torre | ICHOM
Standardisation Director | Jason Arora | ICHOM
AUSTRALIA
David McCombe | Royal Children’s Hospital Melbourne
Richard Lawson | New Children’s Hospital – Sydney
CANADA
Kristen Davidge | SickKids
INDIA
Raja Sabapathy | Ganga Hospital
ITALY
Tracy Fairplay | Studio Fairplay
SWEDEN
Anna Gerber Ekblom | Karolinska Institutet
Liselotte Hermansson | Örebro University Hospital
UNITED KINGDOM
Andrea Jester | Birmingham Children’s Hospital
UNITED STATES
Amir Taghinia | Boston Children’s Hospital
Amy Lake | Texas Scottish Rite Hospital
Brian Labow | Boston Children’s Hospital
Charles Goldfarb | Washington University
Donald Bae | Boston Children’s Hospital
Kerby Oberg | Loma Linda University
Lesley Butler | Texas Scottish Rite Hospital
Scott Oishi | Texas Scottish Rite Hospital
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