Patient-Centered Outcome Measures

Heart Valve Disease

Completed

The ICHOM Set of Patient-Centered Outcome Measures for Heart Valve Disease results from hard work by a group of leading healthcare providers, researchers, and patient representatives. It represents the outcomes that matter most to people (≥18 years old) with Heart Valve Disease. We urge all providers worldwide to start measuring these meaningful outcomes, which will guide them to improve their care quality.

  1. Includes Early Mortality, Late Mortality, Valve-related Mortality and All-cause Mortality
  2. Defined by the EQ-5D-5L questionnaire
  3. Defined by the Impact on Mental Health & Daily Activities questionnaire (IDCV)
  4. Includes Aortic/Mitral/Tricuspid valve stenosis and Aortic/Mitral/Tricuspid valve regurgitation
  5. Includes Angina Pectoris and NYHA functional class
  6. Includes Stroke (ischemic/hemorrhagic) and Thromboembolic event (non-cerebral)
  7. Includes Conversion to open-heart surgery, Reoperation for bleeding, Periprocedural myocardial infarction, New permanent pacemaker, Major/minor vascular complications, Low-cardiac output syndrome, Hospital stay, and ICU Stay
  8. Includes Paravalvular insufficiency and Device migration (only applicable to percutaneous devices)
  9. Refers to Structural and Non-Structural valve deterioration

SPECIAL MENTION

We would like to thank the following contributors, who participated in the development of the Set by providing their unique expertise and knowledge for key aspects of the Set, without which this project could not have been brought to completion:

William A. Zoghbi | Houston Methodist
Philippe Pibarot | Québec Heart and Lung Institute
Marta Sitges | Cardiovascular Institute at the Hospital Clinic
Jerome Bax | Leiden University
Erwan Donald | University Hospital of Rennes
Jean-Louis de Brux | Société Française de Chirurgie Thoracique et Cardio-Vasculaire


Implementation Resources

You will need a Connect account to access the following documents:

Heart Valve Disease Reference Guide
Heart Valve Disease Data Dictionary

You can access the following documents without:

Heart Valve Disease Flyer

You can join here. If you are already a member, please login here.

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All of the basic information you need to implement ICHOM Sets is available in the links above.

However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems.

This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

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Team that developed this set

PROJECT TEAM
Chair | Hanneke Takkenberg | Erasmus University Medical Campus, Rotterdam
Chair | Emmanuel Lansac | Hôpital Pité Salpêtrière
Research Fellow | Kevin Veen | Erasmus University Medical Campus, Rotterdam
Project Manager | Andria Joseph | ICHOM
Project Manager | Paula Blancarte Jaber | ICHOM
Research Associate | Frieda Sossi | ICHOM
Director of Outcomes Research | Zofia Das-Gupta | ICHOM

AUSTRALIA
Aubrey Almeida | Monash Medical Centre; Australian & New Zealand Society of Cardiac & Thoracic Surgeons
Philip Holmes*

AUSTRIA
Andreas Zuckermann | Medical University of Vienna

BELGIUM
Bart Meuris | K.U. Leuven, Heart Valve Society (HVS)

CANADA
John Stott* | Heart Valve Voice Canada

GERMANY
Evaldas Girauskas | University Heart Center Hamburg; HVS

ITALY
Silvana Medica*

THE NETHERLANDS
Jolanda Kluin | Academic Medical Centre and University of Amsterdam; HVS; European Association for Cardio-Thoracic Surgery (EACTS)

NORWAY
Gry Dahle | Rikshospitalet; International Society for Minimally Invasive Cardiothoracic Surgery (ISMICS)

SPAIN
Rafael Sádaba | Hospital Universitario de Navarra; European Association for Cardio-Thoracic Surgery

SOUTH AFRICA
Ruchika Meel | Chris Hani Baragwanath Hospital; University of Witwatersrand; South African Heart Association

UNITED KINGDOM
Suleman Aktaa | Leeds Institute of Cardiovascular and Metabolic Medicine; European Society of Cardiology (ESC)
Wil Woan | Heart Valve Voice UK
Daniel Colgan*

UNITED STATES
Elena Aikawa | Harvard University; International Society for Applied Cardiovascular Biology (ISACB)
Faisal G. Bakaeen | Cleveland Clinic; Society of Thoracic Surgeons
Frederick Schoen | Brigham and Women’s Hospital; Harvard Medical School; ISACB
Hani Jneid | Baylor College of Medicine; American Heart Association (AHA)
Husam Balkhy | University of Chicago; ISMICS
Molly Szerlip | The Heart Hospital Baylor Plano; American College of Cardiology (ACC)
Ourania Preventza | Baylor College of Medicine; American Association for Thoracic Surgery (AATS)
Pinak Shah | Brigham and Women’s Hospital; ACC
Vera H. Rigolin | Northwestern University; AHA
Wilson Y Szeto | University of Pennsylvania

* Patient Representative


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©2022 ICHOM | ©2022 ICHOM Sets of Patient Centered Outcome Measures are made available under copyright by ICHOM. They may not be used in commercial contexts without the prior written permission of ICHOM

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