Patient-Centered Outcome Measures

Inflammatory Arthritis

Completed

The ICHOM Set of Patient-Centered Outcome Measures for Inflammatory Arthritis is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Inflammatory Arthritis. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

  1. Multiple outcome instruments will be linked to domain-specific common metrics, using item response theory
  2. Combination of subjective and objective measures: acute phase response, joint assessment, body surface area & enthesitis and dactylitis (PsA)
ICHOM Standard Sets Inflammatory Arthritis Outcomes Wheel

Implementation Resources

You will need a Connect account to access the following documents:

Inflammatory Arthritis Reference Guide
Inflammatory Arthritis Data Dictionary

You can access the following documents without:

Inflammatory Arthritis Manuscript
Inflammatory Arthritis Flyer

You can join here. If you are already a member, please login here.

ICHOM Accreditation Product Logo

All of the basic information you need to implement ICHOM Sets is available in the links above.

However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems.

This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

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Team that developed this set

PROJECT TEAM
Chair | Harald Vonkeman | Medisch Spectrum Twente & University of Twente
Co-Chair | Mart van de Laar | Medisch Spectrum Twente & University of Twente
Research Fellow | Martijn Oude Voshaar | University of Twente
Project Leader | Zofia Das-Gupta | ICHOM

ARGENTINA
Enrique Soriano | Instituto Universitario Hospital Italiano de Buenos Aires

BRAZIL
Geraldo Pinheiro | Rio de Janeiro State University

FRANCE
Laure Gossec | Pitié-Salpêtrière Hospital

HONG KONG
Jeffrey Chau*

ISRAEL
Merav Lidar | Sheba Medical Center

NETHERLANDS
Angelique Weel | Maasstad Hospital
Annelies Boonen | Maastricht UMC
Johannes Bijlsma | EULAR
Marieke Voshaar*
Maarten de Wit*
Nico Wulffraat | UMCU

NEW ZEALAND
William Taylor | University of Otago

SINGAPORE
Katy Ying Ying Leung | Duke-NUS Graduate Medical School

SOUTH AFRICA
Girish Mody | Nelson Mandela School of Medicine

SWEDEN
Christina Opava | Karolinska Institutet
Sofia Ernestam | Karolinska Institutet

SWITZERLAND
Delphine Courvoisier | University Hospitals of Geneva

UNITED KINGDOM
Benjamin Ellis | Imperial College Healthcare NHS Trust
Mwidimi Ndosi | University of the West of England

UNITED STATES
Christine Hale*
Jeffrey Curtis | University of Alabama at Birmingham
Jennifer Horonjeff*
Kaleb Michaud* | University of Nebraska Medical Center & National Data Bank for Rheumatic Diseases
Philip Mease | University of Washington

*Patient representative

ICHOM Standard Sets Inflammatory Arthritis Working Group Members

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©2022 ICHOM | ©2022 ICHOM Sets of Patient Centered Outcome Measures are made available under copyright by ICHOM. They may not be used in commercial contexts without the prior written permission of ICHOM

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