The ICHOM Set of Patient-Centered Outcome Measures for Macular Degeneration is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Macular Degeneration. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
2. Individual treatments received for macular degeneration
3. Recommended to track via the Brief Impact of Vision Impairment (B_IVI) Questionnaire
4. Presence of fluid, edema, or hemorrhage
You will need a Connect account to access the following documents:
All of the basic information you need to implement ICHOM Sets is available in the links above.
However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems.
This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.
Team that developed this set
Mark Gillies | University of Sydney
Kim Ramasamy | Aravind Eye Care System
Naga Yoshimura | Kyoto University
Hiroshi Tamura | Kyoto University
Norfariza Ngah | Hospital Selayang
Caroline Klaver | Erasmus Medical Center
Gemmy Cheung | Singapore National Eye Center
Inger Westborg | Umeå University; Registercenter Syd/EyeNet Sweden
Daniel Barthelmes | University Hospital Zurich
Robert Johnston | Gloucestershire Hospitals NHS Foundation Trust
Adnan Tufail | Moorfields Eye Hospital
Ian Rodrigues | St. Thomas’ Hospital
Martin McKibbin | Royal College of Ophthalmologists
Cathy Yelf* | Macular Society
Mark Blumenkranz | The Byers Eye Institute at Stanford
Suzann Pershing | Stanford University; American Academy of Ophthalmology; VA Palo Alto Health Care System
Christina Weng | Baylor College of Medicine
Julia Haller | Wills Eye Hospital; Thomas Jefferson University
Are you implementing ICHOM Sets?
If your are implementing ICHOM Sets, please help us understand more about your journey by filling in our Implementation Survey. Click on the link below to complete:
We would like to add you to our Implementation Map if you are implementing or have implemented ICHOM Sets. Please click on the button below for more information.