Patient-Centered Outcome Measures

Macular Degeneration

Completed

The ICHOM Set of Patient-Centered Outcome Measures for Macular Degeneration is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Macular Degeneration. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1. Endophthalmitis

2. Individual treatments received for macular degeneration

3. Recommended to track via the Brief Impact of Vision Impairment (B_IVI) Questionnaire

4. Presence of fluid, edema, or hemorrhage

ICHOM Standard Sets Macular Degeneration Outcomes Wheel

Implementation Resources

You will need a Connect account to access the following documents:

Macular Degeneration Reference Guide
Macular Degeneration Data Dictionary

You can access the following documents without:

Macular Degeneration Manuscript
Macular Degeneration Flyer

You can join here. If you are already a member, please login here.

ICHOM Accreditation Product Logo

All of the basic information you need to implement ICHOM Sets is available in the links above.

However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems.

This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

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Team that developed this set

AUSTRALIA
Mark Gillies | University of Sydney

INDIA
Kim Ramasamy | Aravind Eye Care System

JAPAN
Naga Yoshimura | Kyoto University
Hiroshi Tamura | Kyoto University

MALAYSIA
Norfariza Ngah | Hospital Selayang
Dato Shankar*

NETHERLANDS
Caroline Klaver | Erasmus Medical Center

SINGAPORE
Gemmy Cheung | Singapore National Eye Center

SWEDEN
Inger Westborg | Umeå University; Registercenter Syd/EyeNet Sweden

SWITZERLAND
Daniel Barthelmes | University Hospital Zurich

UNITED KINGDOM
Robert Johnston | Gloucestershire Hospitals NHS Foundation Trust
Adnan Tufail | Moorfields Eye Hospital
Ian Rodrigues | St. Thomas’ Hospital
Martin McKibbin | Royal College of Ophthalmologists
Cathy Yelf* | Macular Society

UNITED STATES
Mark Blumenkranz | The Byers Eye Institute at Stanford
Suzann Pershing | Stanford University; American Academy of Ophthalmology; VA Palo Alto Health Care System
Christina Weng | Baylor College of Medicine
Julia Haller | Wills Eye Hospital; Thomas Jefferson University

*Patient representative

ICHOM Standard Sets Macular Degeneration Working Group Members

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©2022 ICHOM | ©2022 ICHOM Sets of Patient Centered Outcome Measures are made available under copyright by ICHOM. They may not be used in commercial contexts without the prior written permission of ICHOM

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