Standard Sets

Breast Cancer

Completed & Harmonized

The ICHOM Standard Set for Breast cancer is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to persons with Breast cancer. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Complications will be recorded based on the type of therapy needed or action required to correct the complication as described in the Clavien-Dindo Classification and CTCAE v4.0

2 Includes depression and anxiety.

3,4 Recommended to track via the EORTC Quality of Life Questionnaire – Core Questionnaire (EORTC QLQ-C30).

5 Includes body image and satisfaction with breast(s). Recommended to track via the EORTC Quality of Life Questionnaire – Breast Cancer Specific Questionnaire (EORTC QLQ-BR23) and the BREAST-Q – Satisfaction with Breasts.

6 Includes arm and breast symptoms. Recommended to track via the EORTC Quality of Life Questionnaire – Breast Cancer Specific Questionnaire (EORTC QLQ-BR23).

7 Recommended to track via the EORTC Quality of Life Questionnaire – Breast Cancer Specific Questionnaire (EORTC QLQ-BR23).

8 Recommended to track via a single item from the EORTC Quality of Life Questionnaire – Liver Metastases Colorectal Module (EORTC QLQ-LMC21).

9 Recommended to track via a subset of questions from the Functional Assessment of Cancer Therapy-Endocrine Symptoms (FACT-ES).

10 Includes sexual functioning and vaginal symptoms. Recommended to track via the EORTC Quality of Life Questionnaire – Breast Cancer Specific Questionnaire (EORTC QLQ-BR23) and a subset of questions from the Functional Assessment of Cancer Therapy-Endocrine Symptoms (FACT-ES).

11 Includes physical, emotional, cognitive and social functioning, ability to work and overall well-being. Recommeded to track via the EORTC Quality of Life Questionnaire – Core Questionnaire (EORTC QLQ-C30).

12 Includes overall and cause-specific survival.

Resource Documents

Breast Cancer Reference Guide
Breast Cancer Data Dictionary
Breast Cancer – A Standard Set of Value-Based Patient-Centered Outcomes for Breast Cancer
Breast Cancer Flyer

Team that developed this standard

AUSTRALIA
Rodney Cooter | Monash University
Geoff Delaney | South Western Sydney, Local Health District
Patricia Hancock* | Breast Cancer Network Australia
Wee Loon Ong | Peter MacCallum Cancer Centre
Christobel Saunders | University of Western Austrlia
Lisa Sheeran | Peter MacCallum Cancer Centre

BELGIUM
Francois Duhoux | Cliniques Universitaires Saint-Luc

IRELAND
John Browne | University College Cork

MALAYSIA
Cheng Har Yip | Subang Jaya Medical

ITALY
Karen Benn* | Europa Donna

MEXICO
Felicia Knaul* | Cancer de Mama

NETHERLANDS
Anne Knip* | Borstkanker Vereniging Nederland
Linetta Koppert | Erasmus MC Cancer Institute
Marc Mureau | Erasmus MC Cancer Institute
Mark Stoutjesdijk | Ikazia Hospital Rotterdam
Marie-Jeanne Vrancken Peeters | Antoni van Leeuwenhoek

SWEDEN
Yvonne Wengström | Karolinska Institutet

UNITED STATES
Kimberly Allison | Stanford University, School of Medicine
Patricia Ganz | UCLA Schools of Medicine & Public Health
Reshma Jagsi | University of Michigan
Henry Kuerer | MD Anderson Cancer Center
Sarah McLaughin | Mayo Clinic Jacksonville
Ann Partridge | Dana-Farber Cancer Institute
Dereesa Reid* | Hoag Orthopedic Institute
Thomas Smith | Johns Hopkins Institute

*Patient representative


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