Cleft Lip & Palate
The ICHOM Standard Set for Cleft Lip & Palate is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with cleft lip & palate. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.
- Includes number of interventions requiring anesthesia
- Includes bleeding requiring return to OR, bleeding requiring transfusion, infection requiring return to OR, infection or exposure of graft material requiring return to OR for removal or replacement, wound: complete dehiscence, wound: palatal dehiscence requiring return to OR, palatal flap necrosis, wound: oronasal fistula, respiratory distress: requires mechanical ventilation (major), LRI, death, and the number of hospitalized days following a procedure
- Includes percentile on growth chart and change in percentile between birth and 3 months
- Recommended to track via Cleft Q Face, Jaw, and Dental Appearance Scales along with facial photographs
- Recommended to track via Cleft Q Eating and Drinking Scales
- Recommended to track via the DMFT, the COHIP Oral Symptoms Scale, the 5 Year Index, the GOSLON, and lateral cephalogram
- Includes articulation, intelligibility, and velopharyngeal competence. Recommended to track via the modified PCC, the Velopharyngeal Competence Scale, the Intelligibility in Context Scale, and the Cleft Q Speaking and Speech Scales
- Recommended to track via the Cleft Q Social Life and School Life Scales and the Cleft Q How Do You Feel Scale.