Standard Sets

Colorectal Cancer

The ICHOM Standard Set for Colorectal cancer is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to persons with Colorectal cancer. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1 Complications will be recorded based on the type of therapy needed or action required to correct the complication as described in the Clavien-Dindo Classification and CTCAE v4.0.l

2,3,4 Recommeded to track via the EORTC Quality of Life Questionnaire – Core Questionnaire (EORTC QLQ-C30).

5 Includes bowel functioning, fecal leakage, stool frequency, diarrhea and dietary issues. Recommeded to track via the dietary subscale of the Memorial Sloan-Kettering Cancer Center (MSKCC) Bowel Function. Recommeded to track via the EORTC Quality of Life Questionnaire – Colorectal Cancer Module (EORTC QLQ-CR29).

6 Recommended to track via a single item from the EORTC Quality of Life Questionnaire – Liver Metastases Colorectal Module (EORTC QLQ-LMC21).

7 Recommended to track via the EORTC Quality of Life Questionnaire – Colorectal Cancer Module (EORTC QLQ-CR29).

8 Includes erectile dysfunction and vaginal symptoms. Recommended to track via the EORTC Quality of Life Questionnaire – Colorectal Cancer Module (EORTC QLQ-CR29).

9 Includes physical, emotional and social functioning and mobility and overall well-being. Recommended to track via the EORTC Quality of Life Questionnaire – Core Questionnaire (EORTC QLQ-C30).

10 Includes overall and cause-specific survival.

11 Includes pathologic complete response, margin status and recurrence and progression free survival.

12 Includes place of death and preference for place of death according to the patient.

Team that developed this standard


Resource Documents

Colorectal Cancer Reference Guide
Colorectal Cancer Data Dictionary
Colorectal Cancer – An International Collaborative Standardizing a Comprehensive Patient-Centered Outcomes Measurement Set for Colorectal Cancer
Colorectal Cancer Flyer

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