Standard Sets

Macular Degeneration

The ICHOM Standard Set for Macular Degeneration is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Macular Degeneration. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1. Endophthalmitis

2. Individual treatments received for macular degeneration

3. Recommended to track via the Brief Impact of Vision Impairment (B_IVI) Questionnaire

4. Presence of fluid, edema, or hemorrhage

Team that developed this standard


Resource Documents

Macular Degeneration Reference Guide
Macular Degeneration Data Dictionary
Macular Degeneration Gap Analysis Tool
Macular Degeneration – Defining a Minimum Set of Standardized Patient-centered Outcome Measures for Macular Degeneration
Macular Degeneration Flyer

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