Standard Sets

Macular Degeneration

Completed & Harmonized

The ICHOM Standard Set for Macular Degeneration is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Macular Degeneration. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

1. Endophthalmitis

2. Individual treatments received for macular degeneration

3. Recommended to track via the Brief Impact of Vision Impairment (B_IVI) Questionnaire

4. Presence of fluid, edema, or hemorrhage

Resource Documents

Macular Degeneration Reference Guide
Macular Degeneration Data Dictionary
Macular Degeneration Gap Analysis Tool
Macular Degeneration – Defining a Minimum Set of Standardized Patient-centered Outcome Measures for Macular Degeneration
Macular Degeneration Flyer

Team that developed this standard

AUSTRALIA
Mark Gillies | University of Sydney

INDIA
Kim Ramasamy | Aravind Eye Care System

JAPAN
Naga Yoshimura | Kyoto University
Hiroshi Tamura | Kyoto University

MALAYSIA
Norfariza Ngah | Hospital Selayang
Dato Shankar*

NETHERLANDS
Caroline Klaver | Erasmus Medical Center

SINGAPORE
Gemmy Cheung | Singapore National Eye Center

SWEDEN
Inger Westborg | Umeå University; Registercenter Syd/EyeNet Sweden

SWITZERLAND
Daniel Barthelmes | University Hospital Zurich

UNITED KINGDOM
Robert Johnston | Gloucestershire Hospitals NHS Foundation Trust
Adnan Tufail | Moorfields Eye Hospital
Ian Rodrigues | St. Thomas’ Hospital
Martin McKibbin | Royal College of Ophthalmologists
Cathy Yelf* | Macular Society

UNITED STATES
Mark Blumenkranz | The Byers Eye Institute at Stanford
Suzann Pershing | Stanford University; American Academy of Ophthalmology; VA Palo Alto Health Care System
Christina Weng | Baylor College of Medicine
Julia Haller | Wills Eye Hospital; Thomas Jefferson University

*Patient representative


©2021 ICHOM

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