Standard Sets

Paediatric Facial Palsy

Completed & Harmonized

The ICHOM Standard Set for Paediatric Facial Palsy is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients with Inflammatory Arthritis. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

  1. Evaluated via eFACE
  2. Tracked via FACE-QKIDS – Appearance of the face
  3. Evaluated via eating and drinking questions
  4. Evaluated via speech questions
  5. Tracked via Visual Analogue Scale
  6. Evaluated via Snellen Chart
  7. Evaluated via ocular symptoms questions
  8. Tracked via PROMIS Paediatric Global Health
  9. Tracked via PROMIS Peer-Relationships
ICHOM Standard Sets Paediatric Facial Palsy Outcomes Wheel

Resource Documents

Paediatric Facial Palsy Reference Guide
Paediatric Facial Palsy Data Dictionary
Pediatric Facial Palsy – An International Collaborative Standardizing Patient-Centered Outcome Measures in Pediatric Facial Palsy
Paediatric Facial Palsy Flyer

Team that developed this standard

Chair | Adriaan Grobbelaar | Royal Free Hospital
Research Fellow | Daniel Butler | Imperial NHS Foundation Trust
Core Working Group Member | Tessa Hadlock | Harvard Medical School
Core Working Group Member | Gregory Borschel SickKids
Project Leader | Alethse De la Torre | ICHOM
Standardisation Director | Jason Arora | ICHOM

Christopher Coombs | Southern Plastic Surgery

Jocelyne Copeland | SickKids

Sinikka Suominen | Helsinki Uniersity Hospital

Akihiko Takushima | Kyorin University Hospital

Alexander Cárdenas Mejía | Hospital Dr. Manuel Gea González
Evangelina Vazquez Curiel* | Patients for Patient Safety

Teresa González Otero | Hospital La Paz

Louise Graham* | Patient Representative
Raman Malhotra | Queen Victoria Hospital

Faye Wachs | California State Polytechnic University Pomona
Jacqueline DIels | University of Wisconsin Hospital and Clinics
Kathleen Bogart | Oregon State University Lisa Ishii | Johns Hopkins Hospital
Lisa McKinley* | Facial Paralysis and Bell’s Palsy Foundation
Mara Robinson | Massachusetts Eye and Ear Infirmary

*Patient representative

ICHOM Standard Sets Paediatric Facial Palsy Working Group Members

©2021 ICHOM


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