Standard Sets

Preterm and Hospitalized Newborn Health

Completed & Harmonized

The ICHOM Standard Set for Preterm and Hospitalised Newborn Health is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to the parents of Preterm and Hospitalised Newborns. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

Patient Reported Outcome Measures (PROMs)

1 Measured by the PARCA-R

2 Measured by the Strengths and Difficulties Questionnaire for 2-4 Year Olds

3 Measured by the Modified Checklist for Autism in Toddlers, Revised

4 Measured by the TNA-AZL Preschool Children Quality of Life Questionnaire

ICHOM Standard Sets Preterm and Hospitalized Newborn Health Outcomes Wheel

Resource Documents

Preterm and Hospitalized Newborn Health Reference Guide
Preterm and Hospitalized Newborn Health Data Dictionary
Preterm and Hospitalized Newborn Health Flyer

Team that developed this standard

PROJECT TEAM
Working Group Chair | Andreas Flemmer | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Research Fellow | Esther Schouten | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Research Fellow | Johanna Steckermeier | Div. Neonatology, Dr. v. Hauner Children’s, LMU University Hospital Munich
Project Manager | Jessily P. Ramirez | ICHOM
Project Manager | Nick Sillett | ICHOM
Research Associate | Christina Nielsen | ICHOM

AUSTRALIA
Jeanie Cheong | Murdoch Children’s Research Institute
Kylie Pussell | Miracle Babies Foundation *

BRAZIL
Alicia Matijasevich | Departamento de Medicina Preventiva, Faculdade de Medicina FMUSP, Universidade de São Paulo

CANADA
Linda Johnston | University of Toronto

FRANCE
Jennifer Zeitlin | Inserm

GERMANY
Silke Mader | European Foundation for the Care of Newborn Infants (EFCNI) *

GHANA
Selina Bentoom | African Foundation for Premature Babies and Neonatal Care*
Kojo Yeboah-Antwi | Father Thomas Alan Rooney Memorial Hospital

GREECE
Eleni Vavouraki | Ilitominon *

INDIA
Arti Maria | Dr. Ram Manohar Lohia Hospital

MEXICO
Ilein Bolaños González | Con Amor Vencerás*
Naira Pereyra | Hospital Star Medica Infantil

NETHERLANDS
Jasper Been | Erasmus MC – Sophia Children’s Hospital

REPUBLIC OF IRELAND
Mandy Daly | Irish Neonatal Health Alliance*

SINGAPORE
Rashmi A. Mittal | KK Women’s and Children’s Hospital

UNITED KINGDOM
James Webbe | Imperial College London
Dieter Wolke | University of Warwick

UNITED STATES
Haresh Kirpalani | Children’s Hospital of Philadelphia
Josef Neu | University of Florida

ZAMBIA
Kunda Mutesu-Kapembwa | University Teaching Hospital/Women and Newborn Hospital, Neonatology Department

*Patient Representative

ICHOM Standard Sets Preterm and Hospitalized Newborn Health Working Group Members

©2021 ICHOM

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