Standard Sets

Stroke

Completed & Harmonized

The ICHOM Standard Set for Stroke is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to patients having a stroke. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

  1. Includes mood and global cognitive function
  2. Includes pain and fatigue
  3. Includes mobility, feeding, ability to return to usual activities, and self care and grooming
  4. Includes social participation and ability to communicate
  5. Tracked via the PROMIS SF v1.1 Global Health, with additional single item questions for mobility, feeding, self care and grooming, and ability to communicate. The Simplified modified Rankin Scale questionnaire (smRSq) is recommended to be included.
ICHOM Standard Sets Stroke Outcomes Wheel

Resource Documents

Stroke Reference Guide
Stroke Data Dictionary
Stroke Gap Analysis Tool
Stroke Flyer

Team that developed this standard

AUSTRALIA
Julie Bernhardt | The Florey Institute of Neuroscience and Mental Health

BRAZIL
Sheila Martins | Hospital Moinhos de Vento, National Stroke Registry

CANADA
Eric Smith | Neurology | University of Calgary | American Heart Association Get With The Guidelines-Stroke registry; Canadian Best Practice Recommendations for Stroke.
Frank Silver | University of Toronto | Ontario Stroke Registry
Patrice Lindsay | Heart and Stroke Foundation of Canada, World Stroke Organization

CHINA
Liping Liu | Capital Medical University, Beijing Tiantan Hospital

NETHERLANDS
Gerard Ribbers, MD PhD | Rehabilitation Medicine | Erasmus University MC; Rijndam rehabilitation center, Rotterdam, the Netherlands

SWEDEN
Bo Norrving, MD | Lund University; Swedish Stroke Register (Riksstroke)

UNITED KINGDOM
Stephanie Gethin | Advanced Practitioner Occupational Therapist | Aneurin Bevan University Health Board, Wales, UK
Charlie Davie | UCLPartners Academic Health Science Network, Royal Free London NHS Foundation Trust

UNITED STATES
Lee Schwamm | Harvard Medical School; Massachusetts General Hospital; American Heart Association Get With The Guidelines-Stroke registry; Paul Coverdell National Acute Stroke Registry; Stroke Joint Commission; Primary & Comprehensive Stroke Center Certification programs
Joel Salinas | Harvard Medical School; Massachusetts General Hospital
Mary George | Deputy Associate Director for Science & Senior Medical Officer, Division for Heart Disease and Stroke Prevention, Centers for Disease Control and Prevention | Paul Coverdell National Acute Stroke Program
Adam Kelly | Neurologist | University of Rochester Medical Center
Linda Williams | VA HSR&D Stroke QUERI, Indiana University School of Medicine
Teri Ackerson* | American Heart Association
Louise Morgan | American Heart Association

* Parent representative

ICHOM Standard Sets Stroke Working Group Members

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