Patient-Centered Outcome Measures

Heart Failure

Completed & Harmonized

The ICHOM Set of Patient-Centered Outcome Measures for Heart failure is the result of hard work by a group of leading physicians, measurement experts and patients. It is our recommendation of the outcomes that matter most to persons with Heart failure. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

  1. Includes dyspnoea, fatigue and tiredness, disturbed sleep, and peripheral oedema.
  2. Includes health-related quality of life, maximum physical exertion.
  3. Includes depression and anxiety, confidence and self-esteem.
  4. Includes admissions, appointments.
ICHOM Standard Sets Heart Failure Outcomes Wheel

Set Materials

Heart Failure Reference Guide
Heart Failure Data Dictionary
Heart Failure – International Consortium for Health Outcomes Measurement (ICHOM) Standardized Outcome Measurement Set for Health Failure Patients

Team that developed this set

AUSTRALIA
John Beltrame | Queen Elizabeth Hospital
Tom Marwick | Menzies Institute for Medical Research
Christopher Reid | Monash University

BRAZIL
Sabrina Bernardez | Hospital do Coração
Salvador Paiva* | Association Friends of the Heart

CANADA
Daniel Burns | University Hospital Ontario

GREECE
Gerasimos Fillipatos | European Society of Cardiology

NETHERLANDS
Arno Hoes | University Medical Centre Utrecht
Luuk Otterspoor | Meetbaar Beter (ADD)

SINGAPORE
Carolyn Lam Su Ping | National University Heart Centre

SOUTH AFRICA
Karen Sliwa | Hatter Institute for Cardiovascular Research Africa

SPAIN
Marisa Crespo-Leiro | European Society of Cardiology

SWEDEN
Hans Persson | Karolinska Institutet

UNITED KINGDOM
Neil Churchill | NHS England
Suzanna Hardman | British Society for Heart Failure
Tina Kinsella* | Cardiomyopathy UK
Mike Knapton | British Heart Foundation
Theresa McDonagh | National Institute for Cardiovascular Outcomes Research (NICOR)
Hugh McIntyre | National Institute for Health Care Excellence
Richard Mindham* | Cardiomyopathy UK
Jillian Riley | Imperial College London
Vicky Parker | Camden Clinical Commissioning Group (ADD)

UNITED STATES
Mariell Jessup | Penn Heart and Vascular Centre
Frederick Masoudi | University of Colorado Hospital
Lynne Stevenson | Brigham and Women’s Hospital and Harvard Medical School

WALES
Stephen Hutchison | Aneurin Bevan Health Board

*Patient representative

ICHOM Standard Sets Heart Failure Working Group Members

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©2022 ICHOM | ©2022 ICHOM Sets of Patient Centered Outcome Measures are made available under copyright by ICHOM. They may not be used in commercial contexts without the prior written permission of ICHOM

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