Patient-Centered Outcome Measures

Inflammatory Bowel Disease


The ICHOM Set of Patient-Centered Outcome Measures for Inflammatory Bowel Disease is the result of hard work by a group of leading physicians, measurement experts and patients. It represents the outcomes that matter most to patients who have had Inflammatory Bowel Disease. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their patients.

  1. Tracked via the IBD-Control
  2. Tracked via the Manitoba IBD Index

Implementation Resources

You will need a Connect account to access the following documents:

Inflammatory Bowel Disease Reference Guide
Inflammatory Bowel Disease Data Dictionary

You can access the following documents without:

Inflammatory Bowel Disease Flyer
Inflammatory Bowel Disease Manuscript

You can join here. If you are already a member, please login here.

ICHOM Accreditation Product Logo

All of the basic information you need to implement ICHOM Sets is available in the links above.

However, for a faster, more easily integrated process, we offer digitised versions of the Set measures. These are designed for immediate upload to existing EMR systems.

This is available as part of our Accreditation package, which recognises your work in putting patient outcomes at the heart of treatment.

Find out more

Team that developed this set

Andrew Kim | St Vincent’s Hospital Sydney

Séverine Vermeire | University Hospitals Leuven

Paulo Kotze | Cajuru University Hospital

ZhiHua Ran | Shanghai Jiaotong University School of Medicine

Brian Feagan | Western University

Marc Derieppe* | AFA

Axel Dignass | Agaplesion Markus Hospital

Rupa Banerjee | Asian Institute of Gastroenterology

Janette Gaarenstroom-Lunt | N-ECCO
C. Janneke van der Woude | Erasmus University Medical Center
Willem Bemelman | University of Amsterdam

Suk-Kyun Yang | University of Ulsan

Keith Bodger | University of Liverpool
Richard Driscoll | IBD2020
Ray Fitzpatrick | University of Oxford
Marian O’Connor | St Mark’s Hospital
Charlotte Roberts | ICHOM
Helen Terry | CCUK
Simon Travis | University of Oxford AHSN

Peter Higgins | University of Michigan
Jillian Meissner* | CCFA
Bruce Sands | Icahn School of Medicine, Mount Sinai
Corey Seigel | Geisel School of Medicine at Dartmouth
Welmoed van Deen | UCLA Center for Inflammatory Bowel Diseases
Alandra Weaver | CCFA

*Patient representative

Are you implementing ICHOM Sets?

If your are implementing ICHOM Sets, please help us understand more about your journey by filling in our Implementation Survey. Click on the link below to complete:

View survey

Implementation Map

We would like to add you to our Implementation Map if you are implementing or have implemented ICHOM Sets. Please click on the button below for more information.

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©2023 ICHOM | ©2023 ICHOM Sets of Patient Centered Outcome Measures are made available under copyright by ICHOM. They may not be used in commercial contexts without the prior written permission of ICHOM


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