Patient Validation Survey
he ICHOM Working Group (WG) for Neurodevelopmental Disorders has identified a minimum set of health outcomes that matter to people living with or having lived experience of a neurodevelopmental disorder, to support improvements to the delivery of healthcare for children and adolescents with these conditions.
To explore whether these outcomes are meaningful and capture what people with lived experience find most important, we invite you to complete the patient validation survey which intends to capture your thoughts on the level of importance of each identified outcome. The results of this survey will be used to guide the WG’s final recommendations for what outcomes should be included. To complete the survey please click on the button below:COMPLETE SURVEY
Are you implementing ICHOM Sets?
If your are implementing ICHOM Sets, please help us understand more about your journey by filling in our Implementation Survey. Click on the link below to complete:
We would like to add you to our Implementation Map if you are implementing or have implemented ICHOM Sets. Please click on the button below for more information.