Patient-Centered Outcome Measures

Neurodevelopmental Disorders

In Progress

Patient Validation Survey

he ICHOM Working Group (WG) for Neurodevelopmental Disorders has identified a minimum set of health outcomes that matter to people living with or having lived experience of a neurodevelopmental disorder, to support improvements to the delivery of healthcare for children and adolescents with these conditions.

To explore whether these outcomes are meaningful and capture what people with lived experience find most important, we invite you to complete the patient validation survey which intends to capture your thoughts on the level of importance of each identified outcome. The results of this survey will be used to guide the WG’s final recommendations for what outcomes should be included. To complete the survey please click on the button below:



ICHOM Standard Sets Neurodevelopmental Disorders Project Team

Are you implementing ICHOM Sets?

If your are implementing ICHOM Sets, please help us understand more about your journey by filling in our Implementation Survey. Click on the link below to complete:

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Implementation Map

We would like to add you to our Implementation Map if you are implementing or have implemented ICHOM Sets. Please click on the button below for more information.

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©2022 ICHOM | ©2022 ICHOM Sets of Patient Centered Outcome Measures are made available under copyright by ICHOM. They may not be used in commercial contexts without the prior written permission of ICHOM


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