Standard Sets

Autism Spectrum Disorder

Completed

ICHOM ASD Standard Set Webinar

We will be running a webinar on Autism Spectrum Disorder on 4th October 2021 (11am EST/4pm BST/ 5pm CET) to ­present the newly launched ASDSS. The virtual event will include a discussion around the project’s inception, ASDSS process, the final standard set, implementation of the standard on a global scale and how this will affect people with autism. Healthcare officials, clinicians, and people with autism and their families and caregivers are encouraged to attend to learn about how the ASDSS will enhance the standard of autism care.

If you wish to attend, please click on the button below to register:


The ICHOM Standard Set for Autism Spectrum Disorders is the result of hard work by a group of leading researchers, psychologists, behavioural analysts, and service user representatives. It represents the outcomes that matter most to children (over the age of 18 months) and adults with autism spectrum disorders. We urge all providers around the world to start measuring these outcomes to better understand how to improve the lives of their service users.

Track A (recommends tools with cost associated with them to match existing tools in the current reimbursement models in North America)

1 Tracked via the Repetitive Behavior Scale-Revised (RBS-R)
2 Tracked via the Social Responsiveness Scale (SRS)
3 Tracked via the Vineland Behavior Scales (VABS)
4 Tracked via the Preferences for Activities of Children (PAC)
5 Tracked via the Child and Family Quality of Life (CFQL-2)
6 Tracked via the McMaster Family Assessment Device
7 Tracked via the Positive and Negative Affect Scale (PANAS / PANAS – C)
8 Tracked via the Child Behavior Checklist (CBCL)
9 Tracked via the Brief Infant Sleep Questionnaire (BISQ)

Track B (recommends tools that are free or have a low cost, and can be used in any healthcare system)

A Tracked via the Repetitive Behavior Scale-Revised (RBS-R)
B Tracked via the Vineland Behavior Scales (VABS)
C Tracked via the Patient Health Questionnaire-2 (PHQ-2)
D Tracked via the Child and Family Quality of Life (CFQL-2)
E Tracked via the McFamily Adaptability and Cohesion Evaluation Scale (FACES)
F Tracked via the Empathy Quotient (EQ)
G Tracked via the Pediatric Sleep Questionnaire (PSQ)

* Defined according to DSM-5 and ICD-11

ICHOM Standard Sets Autism Spectrum Disorder ASD Outcomes Wheel

Resource Documents

ASD Both Track Reference Guide
ASD Data Dictionary Track B
ASD Data Dictionary Track A
Reduced Autism Spectrum Disorder (ASD) Flyer
ICHOM ASD FAQ
Autism Spectrum Disorder Press Release

Team that developed this standard

PROJECT TEAM
Chair | Dr. Ivy Chong |
Research Fellow | Dr. Tim Kutta |
Project Managers | Alex Silkworth, Andria Joseph
Research Associates | Christiana Ilesanmi

THE WORKING GROUP CHINA
Diane Li | Ai You Foundation
Weihe Huang | Creating Behavioral + Educational Momentum

INDIA
Merry Baura | Action for Autism
Sudhanshu Grover | Action for Autism
Shaneel Mukerji | India Autism Center & MHF Kolkata

PORTUGAL
Claudia Bandeira de Lima | Institute for Evidence Based Healthcare at University of Lisbon School and Medicine

RUSSIA
Svyatoslav Dovbnya

SPAIN
Javier Virues | Universidad Autónoma de Madrid

UNITED KINGDOM
Neil Martin | Behavior Analyst Certification Board (BACB)

UNITED STATES
Amber Valentino | Trumpet Behavioral Health
Braden Josephson | Centria Healthcare
Dennis Dixon | Center for Autism and Related Disorders
Ellen Fittro | InBloom Autism Services
Hanna Rue | LEARN Behavioral
Johnathan Tarbox | University of Southern California; FirstSteps for Kids
Kim Strunk | Hopebridge
Kristine Rodriguez | Autism Learning Partners
Leslie Morrison | Easterseals Southern California
Peter Gerhardt | The EPIC Programs
Yagnesh Vadgama | Magellan Health

ICHOM Standard Sets Autism Spectrum Disorder ASD Working Group Members

©2021 ICHOM

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